Facing Disability for Families Facing Spinal Cord Injuries
An excellent new web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts.
www.facingdisability.com
American Association of People with Disabilities
A cross-disability website with numerous resources and free membership. Home of Enable magazine.
www.aapd.com/
Amy VanDyken Foundation
Founded by six -time Olympic Gold medal swimmer, Amy VanDyken. Provides essential medical equipment for people with spinal cord injuries who cannot afford these necessities and in cases where insurance will not cover.
www.Amyvandyken.org
Bureau of Rehabilitative Services for the State of Connecticut
State assistance for the disabled – “Creating opportunities to enable you to work competitively and live independently”
www.brs.state.ct.us
Cherish the Children Foundation, Glastonbury, CT
Connecticut Foundation that makes financial assistance grants to families with children in need
www.ctchildren.org
Christopher & Dana Reeve Foundation
Very helpful website with listing of resources for spinal cord injured individuals
www.christopherreeve.org
Disability Resource Center
Provides information, independent living skills training, peer support and advocacy for people with disabilities
www.drcfc.org
Gaylord Sports Association
Contact for information about adaptive sports programs
Katie Joly, kjoly@gaylord.org
203-284-2772
www.gaylord.org
Getting Back Up
Funding available upon application for exercise based recovery programs and the purchase of adaptable products. Founded in 2011 by Scott Fedor who was injured in a diving accident and is now a quadriplegic.
www.gettingbackup.org
Gridiron Heroes Foundation
Founded by Eddie Canales and his, Chris, who was injured in 2001 playing high school football. Foundation has been featured on HBO Real Sports; funded privately. Makes grants for immediate and long term care needs for individuals injured playing high school football.
www.Gridironheroes.org
Help Hope Live
Organization that helps families mobilize their communities to fundraise for catastrophic injury expenses
www.HelpHOPELive.org
Independence Foundation, Elma, NY
Helps physically handicapped live independent lives
cmuller@theindependencefoundation.org
716-685-3976
www.theindependencefoundation.org
Kelly Brush Foundation
Founded by Middlebury College athlete Kelly Brush who sustained a spinal cord injury in downhill ski racing, the Foundation provides grants for adaptive sports equipment.
www.kellybrushfoundation.org
Life Rolls On Foundation
An organization that sponsors adaptive surfing and skating events for young people with spinal cord injuries.
www.liferollson.org
Molly Ann Tango Foundation
Provides assistance to families with special needs children
www.mollytango.org
National Spinal Cord Injury Association
Connecticut Chapter
Very informative: contact Jim Quick: jeq@juno.com
Makes grants for repairs and small items up to $250
www.sciact.org
New England Assistive Technology Marketplace
For purchase of used durable equipment
Click on Equipment Center
www.neatmarketplace.org
Project Walk, Canton, MA
Non-profit exercise based recovery program with educational support for SCI
www.projectwalk.org
Recycled Wheelchairs, Marlborough, MA
David Heim rebuilds power wheelchairs for uninsured users
www.wheelchaiarrecycler.org
Ryan Martin Basketball Camps
Ryan Martin is a wheelchair basketball athlete who has competed in college and then as a professional. Ryan’s foundation has established basketball camps in CT for disabled children and also for wounded veterans. His message is inspirational and motivating.
www.ryanmartinfoundation.org
Society for Accessible Travel and HospitalityInformation on accessibility and travel
www.Sath.org
Travis Roy Foundation, Boston, MA
Gives individual grants to people with spinal cord injuries
www.travisroyfoundation.org
Wheels with Wings
Located in Buffalo, New York, this organization makes quality of life grants to individuals with spinal cord injuries nationwide. Grants include home modifications, ramps, and therapy programs for rehabilitation.
www.wheelswithwings.org